Doctor visit pals

     This morning we had another doctor's appointment with the physiotherapist. Nothing has changed.
      We have to go back to doing neckercise and wait to hear about getting a T.O.T collar. The only other option would be surgery, but the surgeon we saw said that it's not that bad anymore. So, we stretch and we wait.

     While we were at the Children's Outpatient, we ran into my best friend and her daughter. We hung out to be moral support while they were in their room. Kaelynn napped and I watched Thumbellina.

Physio Tuesday

     We woke up bright and early and made it to the physiotherapy appointment right on time. Normally, I like to arrive early but no one wants to sit in the Children's Outpatient Clinic longer than needed. I spend about 5 minutes trying to make their self check in work. 20 minutes later, we are in the room....when she wasn't trying to run away from the room.

     The doctors ask me if I've seen any improvement. I say it's about the same. However; they notice improvement because they see her once every 2 months. Some mom friends we ran into at the mall agree that she is straighter.

     I have forms to fill out for a charity to get her a TOT Collar, a doctors note and am now waiting on notice of assessments. They said that she would be a good candidate for the collar. She would only need it about 4-6 hours a day at home when awake (and more so when she is being still/lazy). There are 2 more options, leave it as is and hope as she grows it will figure itself out or small surgery to clip and loosen her muscle when she is older.

     We go back in 2 months.

Again with the physio

     After a night of Kaelynn waking every 30 mins, we had to wake up bright and early for physiotherapy.
    We were ready and had to leave to catch the 9:05am bus. We get out there at 8:50am and I had to run with her in her Ergo. We made it to the bus without slipping or dying.
    
     A resident of the doctor saw us first and asked questions. She was interested in how it was going and in how she was walking (which had nothing to do with her neck). The doctor came in and said that she has a good range of motion, it's just the tilt that needs to get strengthened still.        A social worker for the hospital came to talk to us about our options for getting the T.O.T collar for her (stuff happened not to long ago and daddy isn't working). She is supposed to call me tomorrow with what she can do for us.

More physio therapy

     This morning, we braved the cold to go to her physiotherapy appointment. I had hoped it would be her last, but we go back in 2 months.
     We discussed her past ultrasound and it was the same as the technician told us: the muscles are slowly thickening and straightening. Doctor Davidson just came back from a torticollis conference and they suggested a type of noxious stimulus.
     Introducing the TOT COLLAR. I've found little information on how effective it is, more information is on its design. I was given a prescription so I could call the company to get a cost quote and see if insurance covers it. The doctors know it's not for anyone. When I first saw the picture that she showed me when explaining it, I was meh. And after hearing that it's basically a baby shock collar, I am more unimpressed. I will discuss with her dad.
     Where I stand now, the answer is no. It was also noticed that when she stands she is straighter than when she sits. Baby on the go will constantly be on the go, if need be. And when sitting, we can promote straight head just by righting her, like we have been.